Looks like I have stage IV metastatic malignant melanoma, which after the little research I did over the weekend, looks pretty bad. The histology report, of course, makes absolutely no sense to me (or to anyone else I know) and needs some explaining. Mirek’s daughter is going to try to arrange a second consultation/opinion for me with an oncologist at Motol this week - she's a nurse there.
I only spent about ten minutes with my oncologist (now on vacation for the week) on Thursday, before being whisked away to my CT scan, only to spend another ten minutes with her when I got back almost an hour later. We’re to meet again on March 4th and chemo should begin on the 11th. She seems really nice and very knoweledgable and is located at Karlovo Náměstí, my usual hospital, close to my apartment. Chemo would just be once a month, but cost a fortune.
I’m going back to Homolka tomorrow to try to get all these tests and reports sent to me electronically, so I can have them translated and share them with other doctors. I'm looking for a clinical trial in the US, but found the little research I did both overwhelming and depressing.
I wanted this to be over. I wanted to write the stories from Intensive Care like "Mike vs. the Bedpan" and "Me and My Catheter," but I'm still getting over the surgery, while preparing myself for more unknowns.
I’m also going there to visit Vlad’a, who was back in the ward and already smoking on the balcony yesterday when I spoke to him. He had his stitches out today - through his nose of all places. I need to catch him before he chomps the bit back to Karvina, as I did his portrait and framed it over the weekend.
So, back at home and still living with my mother :-) and actually getting record amounts of sleep - four hours in a row last night, followed by another one and a half. It was a really beautiful day in Prague.
I went with my last Kateřinská roommate, Ivan (the guy with the strokes), Martha and my Mom down to the river to feed the swans. Unfortunately, everyone else in Prague had the same idea and all the swans were stuffed by the time we got there.