I had my blood test and then decided to wait around for my oncologist, who was due to fly to Chicago for a conference the next day, to find out what the hell was going on. She couldn’t see me until after 10 and then told me “Just the platelets are down below healthy levels [116 v. bottom healthy limit of 140, WBC 5.9 - down a bit, but still within the normal range], but not unsafe. We’ll start the chemo today as planned. Go over there now.”
I went to the other wing, through the maze that is Motol, and they stuck me in a room with two old men who were obviously dying. I could see, hear and smell it on them. One snored heavily while wide-awake, the other groaned loudly in pain only while sleeping. The snoring guy crapped the bed twice. Very sad.
They put my kanyla in around noon; but after Jiffy arrived and already having waited almost four hours for the chemo, I decided to take a walk outside and come back when they were ready. In the mean time, they moved me and all my stuff to a much better room, with a different, but relatively cheerful old man. Chemo started after 2 and I was there until well after 6. Almost 12 hours for a three and a half hour procedure. I returned home to a very pissed-off cat at about 7:30 PM, who had traded her teeth long ago for eternal youth and an invisibility cloak that obviously doesn’t work:
The other two days of chemo were (not as) long, but uneventful. Dr. Pikus dropped by on Friday to give me my schedule and answer some questions from the PET scan results that I had yet to find a Czech who could understand.
The bad news is that the lung tumor is inoperable: they would have to remove the entire lung :-( not something I’m particularly interested in. The good news is that it is probably dying – ‘apoptosizing’ as opposed to proselytizing ;-) The PET scan revealed no highly-elevated glucose consumption in the lung. The lymphatic tumors are slightly smaller; and there are (apparently) only two left.
A PET scan, however, only reveals tumors larger than 5mm, so it is very possible that I have many smaller ones remaining, including the core of the lung tumor, but it appears that something is working, so:
6.6 - more blood tests
12.6 - moles excised and biopsied
17.6 - more blood tests + biochemistry
18-20.6 - fifth chemo cycle, including the dreaded Carmustine
9.7 @8AM - radiation begins
I threw up yesterday morning, before my pill had a chance to dissolve/work, but am otherwise feeling OK. I’m drinking my Chinese tea, taking my curcumin and even went on a juice fast last week for two and a half days; whatever it takes. I have a funny story about Jiffy, but want to post this now, so it’ll have to wait.
Thanks again for your support!